I had my 7th treatment on Labor Day. (Nurse was willing so I
could get one in before the start of school) My lld sent me to an infectious
disease dr, they and my GP agreed that my immune system was shot. I only showed
antibodies to tetanus even after receiving a flu shot and pneumonia shot. (that
is the 2nd ID dr bc the 1st one looked at my blood work, gave me nasal spray
and said make an apt for 3 months) I had the 1st two infusions at her office and have
been receiving them at home since. I am given prednisone (this makes a mess of
immune system for Lymies but is necessary to avoid rejection) and benadryl (this helps prevent allergic
reaction) 1/2 hour before. The IV bag is connected to a monitor that I can walk
around with bc it is in a fanny pack! Nurse checks temp(which I usually run), and
blood pressure every 15 minutes, then every 30. I drove myself to my 1st two
appointments which I do not advise. If someone can drive you ask for help. I am
usually extremely tired and "loopy" after. My temp usually goes up
and Fibromialgia pain is pretty strong.
Headache usually kicks in too. This lasted 3 days at first (advil helped, I had
stronger meds to take but didn't) but now only about the 1st day. I try to get
them at 8AM so I am good for the next day. After the nurse leaves, I SLEEP.
It's a good day to watch movies. You must drink a lot for a few days before so
your veins are primed for the infusion. I am starting to have problems with
this so we run my arm under hot water for a bit before she tries putting the
needle in. Oh, typically for a week or so after I don't run a fever and the fibro
pains are less so I think it is doing some good.
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